I have done fairly well in life. I have a college degree; I am married; we own a home. On the downside, I must take some meds, and if I miss taking them, life is unbearable (for everyone!) I don't know if it is ME, or if it has anything to do with galactosemia, but I can sometimes feel extreme rage. I'm sure it's a hormone thing. What I don't understand is this: If I had premature ovarian failure as a young teen (or child), why am I going through menopause now??? Why must I have these hot flashes?? This past week was terrible!
I'm new at this site, so please forgive me. Do doctors check this site? Are there any doctors who treat adults with galactosemia? Are we on our own? As a child, my doctors were the best. But they treat children. They don't understand what I'm going through. I don't know if the problems have to do with galactosemia, or if it's ME. Understand?